www.cysticlife.org
I have been a member of Cf groups through yahoo and other sites but have never found something so personal. You actually tell your CF story, upload pictures, and have direct link to your blogs or social networking sites.
It's a more updated way to have access to faces who actually know what we're going through. You can ask questions and get answers!
Who knows more about Cystic Fibrosis than the people who are dealing with it daily? So I encourage you to make this your "Facebook-for CF'ers" and find me after you Join.
Thanks Ronnie for a great new tool!
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