Ok, so I have been pretty bad about blogging lately. I have had so much going on lately that I haven't had much free time. To be honest, I haven't had much of a desire to write.
The other day I said the reason I hadn't written was because I haven't had anything interesting to write about.....but that's not entirely true...
A few weeks ago we had our kickoff luncheon for 2011 Great Strides. I am co-chairing the walk this year with 2 other amazing ladies! I was under the impression that I would not have to speak at this event. I thought it was going to be a learning experience for next years kickoff for me....well needless to say when I got to the event I found out I would be speaking for a few minutes about how CF has affected Ayla's life.
My mind immediately went into a tailspin, and my stomach started turning. What would I say? How would I put the last 3 years of living with CF into 2-3 minutes?
Our representative from the C.F.F. opened up the meeting and introduced us and we each got our turn to share our stories. I was the second person to go...I was getting so nervous and emotional listening to the stories. I was actually fearful that I would be crying before it was my turn.
I pulled it together when my name was called. I spoke about Ayla, her diagnosis, her issues, her triumphs and her personality. I thanked everyone for being there, talked about the science and how much a new enzyme (Zenpep) has changed Ayla's life. I ended with the reason we were all there, which was to raise money to save our kids. To get the researchers and scientists the funding that they so desperately need to make "Great Strides" toward a cure for C.F.
After it was all over I cleaned my plate..which had gone cold from my inability to eat due to nervousness. I was really glad that I spoke and felt a sense of pride after the whole thing was over.
The kickoff was such a great way to get people excited about Great Strides and to give CF a face and name.
I had so many people there to support me and who are signed up to do all kind's of things to help us this year. I am so thankful to those people, you know who you are!
I can't wait to see what Ayla's Army accomplishes in 2011!!
We have our first event on Sat 2.26 2nd Annual Rummage Sale for CF, and I will let you know how we do this year!
We can't list them all, but this is where were starting... 1.) 11/16/2009- Negative test result for C-diff! After a month of meds we are rid of this bug. Thanks for all the prayers~ 2.) 11/23/2009- Normal Sputum Culture, Yay!
3.) 1/3/2010- Normal results in Fat absorbtion tests.
4.) 1/23/2010-Blockage responded to treatment, didn't need surgery!
5.) 1/24/2010- No Pneumonia -as suspected by Dr's :0)
6.) 3/9/2010-Gained 1.5 lbs in less than a month!
7.) 3/10/2010-Cdiff test negative...yay!!!!
8.) 3/19/2010- We are pregnant!!!
9.) 10/30/2010-Ayla still C-diff free after RX
10.)11/20/2010-GI Symtoms have subsided lately
11.) 11/30/2010-So blessed to have such a happy little girl!