Ok, so I have been pretty bad about blogging lately. I have had so much going on lately that I haven't had much free time. To be honest, I haven't had much of a desire to write.
The other day I said the reason I hadn't written was because I haven't had anything interesting to write about.....but that's not entirely true...
A few weeks ago we had our kickoff luncheon for 2011 Great Strides. I am co-chairing the walk this year with 2 other amazing ladies! I was under the impression that I would not have to speak at this event. I thought it was going to be a learning experience for next years kickoff for me....well needless to say when I got to the event I found out I would be speaking for a few minutes about how CF has affected Ayla's life.
My mind immediately went into a tailspin, and my stomach started turning. What would I say? How would I put the last 3 years of living with CF into 2-3 minutes?
Our representative from the C.F.F. opened up the meeting and introduced us and we each got our turn to share our stories. I was the second person to go...I was getting so nervous and emotional listening to the stories. I was actually fearful that I would be crying before it was my turn.
I pulled it together when my name was called. I spoke about Ayla, her diagnosis, her issues, her triumphs and her personality. I thanked everyone for being there, talked about the science and how much a new enzyme (Zenpep) has changed Ayla's life. I ended with the reason we were all there, which was to raise money to save our kids. To get the researchers and scientists the funding that they so desperately need to make "Great Strides" toward a cure for C.F.
After it was all over I cleaned my plate..which had gone cold from my inability to eat due to nervousness. I was really glad that I spoke and felt a sense of pride after the whole thing was over.
The kickoff was such a great way to get people excited about Great Strides and to give CF a face and name.
I had so many people there to support me and who are signed up to do all kind's of things to help us this year. I am so thankful to those people, you know who you are!
I can't wait to see what Ayla's Army accomplishes in 2011!!
We have our first event on Sat 2.26 2nd Annual Rummage Sale for CF, and I will let you know how we do this year!
Krisat-
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I was wondering where you've been :) Glad to hear things are going well! I bet you gave an incredible speech. The first time we were asked to speak about Drew all I could think was "there are so many other CF families here that know so much more than I do". And the lady from the CFF told me that I wasn't telling them about CF in general, I was just telling them all our story, and that they, more than anyone, could actually relate to what I was going through. I hope you have all of your fundraising for Great Strides goes well!
ReplyDeleteGood for you!!! Way to go, CF Momma!! :)
ReplyDeletethanks ladies!!
ReplyDeleteI am proud of you Krista! That had to have been hard to get up and speak. I can write about my feelings with Isabelle all day long on the blog but ask me to talk about it in person, and I can't (at least not yet!).
ReplyDeleteYour event will be great!! I am going into my 14th year to chair or co-chair our Great Strides, hoping to pass the torch and become a worker bee!
ReplyDelete