There are many reasons I created The Breathing Room.........
It gives me (a pretty private person) a way to talk about my daughter Ayla's conditions. It helps to gain support from other people who are going through the same things.....
Another reason is when Ayla was diagnosed with CF, I wasn't given any materials or resources that were geared towards the parents. To help us cope, give us nutrition tips, or just to read about other parents like me. I would have loved to have had a Cystic Life to go to when Ayla's diagnosis was new. So in creating my blog I feel like maybe I have helped someone who is in my position.
This blog also gives me a way to keep all my family and friends updated on our family without having to tell each and every one of them. (I have a huge family-so that's a great thing!)
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