Ayla's BM's haven't been the greatest the past month or so. With being on Cipro for Psuedomonas and all of her other daily meds her digestive systems is pretty much a breeding ground for bacteria. It seems like she will have a few days of ok poops and then a few days where she will go 4-5 times a day and those could be accompanied with pain and oil.
I am just wondering if all this is "normal" for CF'ers because other than Probiotics.....there aren't many options to treat it.
You would think if Oil was present in her stools which is fat, then it would be safe to say she is not absorbing all of the fat from her diet. And isn't that what enzymes are for? Can you ever expect to absorb all of your fat from your diet-living with CF...even on pancreatic enzymes?
It seems like this could just be part of the battle that is living with CF...poor thing....she wants to change her panties all the time b/c she feels like something is there....I guess it's the feeling of always needing to use the bathroom that bothers her and gives her anxiety about having an accident.
It seems like there should be something else out there to help with this....I wish someone would do a study on how diet and quality of food affects people with CF. Diet can heal the obese and even cure cancer so why is CF so different?? Maybe I should just start this study on my own.....I want much better for her than a life of worrying about what people will think if she frequents the bathroom or has constant stomach issues.....
A Forever Home
7 years ago
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