If I've Ever Needed a Breather- Now Is the Time!

Yesterday Ayla woke up from her afternoon nap acting a little strange. She didn't really wake up much and was crying from belly pain. Her face was blotchy and she had a mild fever. I called her pediatrician and he was off on Wednesdays so I made an appointment with another Dr in office.

As I'm gathering my things and getting ready to walk out the door, the phone rings. It's the nurse calling to say that the Dr. wants me to go ahead and take Ayla to the ER! This is how the conversation went:

Me: ER?

Nurse: Yes, the Dr. thinks you should

Me: Dr. Rigby (regular Dr) would want to see her, this is a bit overboard!

Nurse: Well, you said she was lethargic

Me: Yes, but she hasn't been vomiting, isn't dehydrated, and her fever is low

Nurse: I'm sorry that's what the Dr. said

Me: Well this is ridiculous! I am sure that the Dr. looked at the time (3:40) and the size of her chart and didn't want to get involved b/c of her medical history. So please pass this on to her Dr when he gets in tomorrow. And I will be taking her to the ER! Goodbye!

I then got into my car with Ayla and drove to the ER- I was fuming-mad! Got to the hospital and of-course Ayla perks right up and wants to eat and play! But I asked for a chest x-ray while we were there. It came back with a "touch of pneumonia" -their words...

After 2 shots we were back on our way home, and were told to follow up in the morning with pediatrician. (Like they had to tell me that!)

I got home and did what everyone does and Facebook'ed about the day I had. I think my exact words were: "Hurricane Krista will be blowing through White Wilson in the morning!"

So first thing this morning woke up and called right when they opened, and her Dr. had one appointment available. So we took it and flew out of the house to be there on time.

We got there and gave her Dr. the x-ray copy and he came in and said:

"I don't think she has pneumonia! This is what Ayla's x-ray always looks like. This is her normal. " He then went on to say that he didn't want her to have any antibiotics unless it was absolutely necessary because of her tendency to relapse with C-diff. And that he thought it was nothing more than a cold.

We have an appointment next week with Shand's GI and Pulmonology and we will bring the X-ray with us.

Then I brought up the situation with the other Dr cancelling on us and sending us the ER for no reason! And her Dr. basically said that he hadn't had a chance to talk with him yet but that he thinks I am going to run into problems getting her seen with he's not in. That Dr's see her chart and are scared to treat her.

And I said, "Well that's ridiculous! We went to ER for no reason. And I know you would have wanted to see her!" And "that he could never retire because all the other Dr's are scared of my child!" and he said: "I've got another 20 years in me!"

So lucky for us he'll be around for a while. I guess Ayla can't get sick on Wednesday's when Dr. Rigby's off!

For those of you who follow this blog who have CF kids. What do you do about this? I live in an area where there are no specialists (although I would consider her Ped-Dr a Specialist in a sense).

I can see why people pick up their whole lives and move closer to their child's specialists.

For now we will have to deal, but I just think the whole thing is ridiculous!

Whew- Breath taken...