Dr H. called this morning from Shands with good and bad news. The good news is the C-difficile is still gone! Even with Ayla being on antibiotics it has stayed away! That is one less thing for us to be dealing with right now...yay!!
He then asked how Ayla had been doing since coming home last week. I told him she gained 1.5 pounds since mid February, and as far as tummy issues still about the same. Still using the bathroom 4-5 times a day and complaining of pain.
I also explained to him that Ayla is very smart, and knows that when she complains of belly pain she gets a reaction. So she uses it to her advantage at times. She's a very complicated lady...LOL
He assured me that everyone on the GI team was concerned and wanting to take a "watch & see" attitude with Ayla. Which is good..
When I asked if he thought this could be Cholangitis since the xray was clear, he said he thought this was most likely S.I.B.O. (see hyperlink to read way more than you want to about it)
He thinks its possible that because of her very first surgery when she had a Micconium-Illius blockage removed, the section of bowel that they joined could not have very good motility.
So he thinks it's a good idea to come back in April and have a CT-scan done. This will give a more detailed image of whatever it is they see. And if something abnormal is seen they will most likely do a lathroscopic exam (she will be put under for this) which I don't like at all.
Did I mention we don't have time for this?? Ayla's Birthday party is on the 10th and then we have a couple events for Great Strides, and then Great Strides walk on the 24th!
So please join with me and pray that Ayla will begin showing less symptoms and have a clear CT scan next month.
We appreciate each and every prayer coming our way for our little girl!
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