The Breathing Room

Social media is so amazing for so many things. Keeping in touch with friends and family, promoting your business, and making this big world ...

Ayla had a lung function test today. Her numbers were suprisingly good. Like better than they have been all year. Her dr is very pleased and...

Ayla had a check up today at CF clinic. Here's the 4-1-1 Despite all she has going on things went as well as can be expected. She had lo...

We recently moved to a new neighborhood. Ayla is so excited to meet new friends. Yesterday she and Larry were outside and so were our neighb...

I have felt something was "off" with Ayla for quite sometime now. As we're driving home today thoughts are flooding my mind: -...

Over the last few days there has been negative press regarding the corrector-combo drug we have all hung our hats on for the last 7 years. T...

Tonight seemed like any other night, Ayla and I had just made "Not Yo Mamas Banana Pudding" together and it was time for treatment...