Ayla Update

Ayla is enjoying summer, we just got back from visiting family in TN and Ayla got to play with her cousins.

She is playing Upward soccer and seems to enjoy it.  Most of the time she will play and participate but at times seems tired and doesn't want to "go-in." Most of the kids are that way on game day.
She has been doing really good since being out of the hospital since 4/27.  She had another bronch on May 18th and we are still awaiting the fungal culture results.  They were rebronching to look for mold that was seen on a previous culture.  We got preliminary results back that stated there was a fungus present but it was being sent to another lab to be identified.  So I am hoping that somehow it will be something less serious as the geotrichum seen before.
Our Dr at Nemours resigned and we are switching back to Shands CF Center.  We have appointments on July 10 and 11 with CF & Liver Clinics.  I am hoping that all goes well with that.  We got labs drawn today for her appointment with Liver clinic and it was pretty rough.  Ayla's last hospital stay really traumatized her to all things medically related before they even cleaned her arm she was hysterical.
I am anxious to see how the new docs at Shands will want to proceed with the mold that was present on her bronch.
We are looking forward to continuing playing and spending time together this summer, Ayla starts kindergarten on August 15th! I can't believe how big and beautiful she is.  I will update more on the appointments after the 11th.

Autumn is 7 Months!

What I'm Up To:
I am now sitting up all by myself
I am enjoying eating all kinds of new foods
Im nursing 4 times a day and eating 3 "meals"
I am learning new expressions and love to stick out my tongue
I light up when my daddy enters the room
I am sleeping really good and love my bed
I love playing with my sister Ayla
I can sit up in the bath now all by myself with no seat
I love banana
I love my paci
I take two 2 hour naps and sleep about 11 hours a night
These monthly pictures are getting tougher to capture with her being so mobile

What I'm Wearing:
Still in size 3 diapers
A wide range of clothes anywhere from 9-12 months

What People Say About Me:
Everyone still talks about my "Big Eyes"
They are turning brown and are beautiful
That I am such a happy baby

A Note From Mommy:
Dear Autumn,
I can't believe how fast these months are going by.  You are already 7 months old and every day brings a new milestone you are passing.  Pretty soon you will be turning one and not be my "baby" anymore.  You are so sweet and funny in the mornings, we all love to play and snuggle with you since you are so happy.  You love your daddy and he loves to play with you.  Your sister is really loving playing with you since you are more sturdy and now upright.  We are so excited to see what next months brings...who knows...maybe a tooth?!!
Love you so much Bugga-Bugga (thats your nick-name-we don't know how you earned it)

Autumn is 6 Months Old!

Actually she was 6 months on Tuesday but it's been a crazy week!

So sweet, laughing so loud!

She is changing so much! She got shots :(

Isn't she just the cutest??!!

Love her chunky butt!

What I'm Up To:

I am just about sitting upright all on my own now days. 

I am saying "Ma-Ma" all the time and "Da-Da-Da"occasionally (smirk!)

I am rolling all over the place and I can get my legs up under my butt, crawling is not far off

I don't like it when mom leaves the room

I slept through the night for the first time last night, Mom let me cry it out the other night (she is so mean!)

I am good with my hands and I can grab whatever I want

I still don't have any teeth but I am chewing on everything

What I'm Wearing:

mostly 6-9 months clothes

cool summer clothing

mom is really into putting big bows in and buying custom matching outfits for my sister and I

What People are Saying About Me:

That I look like my mom and dad

Still talking about my chunky legs and big eyes

That I am so stinkin cute!

A Note From Mom:

Oh Autumn, 

I can't believe it's been 1/2 a year already!  This past month you have changed so much, you started talking and have really turned into your own little person.  Your sister enjoys helping with your bath and feeding you spoon fulls of cereal.  She loves holding you and tickling you just like your dad! When he sees your sweet face in the morning he just lights up.  I love it! You are such a good baby and happy most of the time.  You are just my little snuggle bug! Did you know you have a nick-name? Bugga-Bugga....your sister was Boogie.  Don't know why or where we get these things....I love you and can't wait to see what I have to say about you next month.

love mom

Bronch Went Well....

Ayla's bronch went well, everything looked good in there and some issues had even improved.  We are waiting to hear about the fungal culture! The initial culture results were negative!

Thank you for all the continued support and prayer!

Bronchoscopy X2

Ayla is having another Bronch on Friday.  They are going in to re-check for Geotrichum (mold) and then it will take about a month for the results.

Prayers appreciated, we are believing for a negative result!

Mother's Day: What's It To You?

My Mom's Grandma & Mother pictured here with Ayla

Mother's Day for me is a great day! I get to celebrate all the wonderful ladies in my life, especially my own wonderful mother.  And I get to feel extra blessed to be "mom" to my girls!
But a recent opportunity to write about fertility and challenges that surround becoming a mom got me thinking-Mother's Day can be one of the hardest days for women.
You may have lost a child and are reminded each year of that loss.  Or you may be desperately trying to get pregnant and this day is a reminder of your many failed attempts.  You could have even lost your own mother and are reminded how much you miss her.
Mother's Day is a wonderful sentiment: "To honor your mother and make her feel extra-special today more than any other day."
But maybe look around you at the friend who's trying to conceive or the acquaintance who's mom passed away this year and show that person a little love too.
It is all about "mothers" but not necessarily just your own.

Just a thought......

Hospital discharge details

So Thursday night, April 26th Ayla's dr came in and said we would not be getting to leave early.
I was hoping since her pft's were so good, she would change her mind.
Well the next day the residents were commenting in how awesome her pft's were and in walks dr and asks us if we want to go home! She said the docs were calling her about discharging us! So we got to go home a few days early! We were so excited!!
Ayla has a follow up visit on Thursday and a bronch scheduled for May 18th to culture again for the mold!
We are believing it's gone and praying for a healthy summer!
We have Ayla on daily miralax and it seems to be helping her!